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Grateful NICU Parent Runs Boston Marathon

Like many expectant parents, Paul and Kelsey Brogna eagerly awaited the birth of their first child and the exciting milestones that would follow – the first glimpse of his face, the first touch of his hand and the first photo they would take as a family.

When several unforeseen complications occurred during labor and delivery, they feared the worst. But thanks to the advanced, expert care Kelsey and Baby Luca received at Brigham and Women’s Hospital (BWH) in the spring of 2017, including a 13-day stay in the Newborn Intensive Care Unit (NICU), the Brogna family celebrated those joyous firsts and many more.

In April, 2018, they add two more milestones to their list. Paul will participate in his first marathon – running in support of Brigham and Women’s with the Stepping Strong Marathon Team – followed by Baby Luca’s first birthday a few days after the race.

“Brigham and Women’s saved our son’s life, and I wanted to give back to the hospital that has given our family this priceless gift,” Paul said. “This hospital is an amazing place, and we felt so blessed to be there. I wanted to do anything I could to pay it forward.”

Brogna family celebrates a milestone.

Appreciation for ‘Unsung Heroes’

In addition to the expert medical care Luca received in the NICU, Paul said they were overwhelmed by the unwavering kindness, compassion and professionalism of BWH staff throughout their stay. Countless gestures – from a housekeeper’s warm smile to a surprise photo collage made by Luca’s care team – provided comfort during a stressful time, Paul recounted.

“Every single person we encountered did their job phenomenally,” he said. “The staff are unsung heroes and the glue that allows families like us to have a chance for healthy recoveries. Without them, none of this is possible.

The Brognas chronicled their experiences on a blog to keep family and friends updated. As time went on, it provided a therapeutic outlet for the couple as well as an opportunity to publicly thank Luca’s wonderful care team, Paul said.

The physical space of the NICU – which recently completed its third and final wave of expansion and renovation – also contributed to their exceptional experience, he added. They appreciated having a private, spacious room with a pullout couch and closet, allowing them to stay overnight.

“We tried to stay there almost every night,” Paul said. “We felt like we were in the best place in the world.”

Paul and Kelsey Brogna leave the NICU with their son, Luca.

Eager to find a way to support other BWH patients and families, Paul began searching for fundraising opportunities a few weeks after he and Kelsey brought Luca home. He was drawn to the Brigham’s marathon program.

Lacking much running experience, he was initially a little daunted by the team’s training schedule, which began in December, 2017, with six- to eight-mile runs. To prepare, Paul started training on his own in October and November.

“I’ll never forget the first weekend. It took 12 minutes to run a mile, and I stopped three times. I thought I made a huge mistake,” he said. “But little by little, I added a mile each weekend and by December I did a half-marathon. The idea that I could knock out 10 or 20 miles now is unbelievable to me.”

Paul said he’s excited not only to accomplish something he once thought was impossible, but also to give back.

“While our experience ignited this journey, I’m not doing this for Luca or for us. It’s for the next person who will need help,” Paul said. “I’m so grateful and happy to be part of a much bigger cause.”

About Stepping Strong

The Gillian Reny Stepping Strong Center for Trauma Innovation was established by the Reny family to honor the BWH caregivers who saved their daughter Gillian’s life and legs in the aftermath of the 2013 Boston Marathon bombings. Five years after the tragedy, the center has raised more than $13 million to transform trauma research and care for civilians and members of the military who experience traumatic injuries and events. Funds raised by members of the 2018 Stepping Strong Marathon Team support the center’s work. Learn more about the center at BWHSteppingStrong.org.

Jessica Z.