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Affairs of the Heart: Living with Cardiomyopathy (Free Patient Event)

Overview of Event 

On Saturday, May 19th, at the Joseph B. Martin Conference Center in Boston, MA, a group of internationally recognized cardiovascular specialists from the Cardiovascular Genetics Center at Brigham and Women’s Hospital (BWH) will discuss the role of genetics in the early detection, management and treatment of cardiomyopathy, any disorder that affects the heart muscle.  

Affairs of the Heart: Living with Cardiomyopathy is for patients and family members who are affected by inherited heart disease. The free event will focus on inherited cardiovascular disorders, such as hypertrophic cardiomyopathy (HCM) and dilated cardiomyopathy (DCM). Speakers from the Cardiovascular Genetics Center will discuss cutting-edge diagnostic testing that can assess your risk for developing HCM or DCM, and how early intervention can help prevent heart damage in those affected by cardiomyopathy.

Date/Time

  • Saturday, May 19, 2018 from 8 a.m. - 3 p.m.

Location 

Speakers

The speakers will include the following cardiovascular experts from Brigham and Women’s Hospital:

Additional speakers will include experts from Michigan Medicine, and Boston Children's Hospital.       

Agenda   

8 - 9 a.m.

Check-in and Continental Breakfast

9 - 9:05 a.m.

Welcome Remarks

9:05 - 9:25 a.m.

Hypertrophic Cardiomyopathy (HCM) and Dilated Cardiomyopathy (DCM) 

What are they? How do we treat them?

9:30 - 9:50 a.m.

Genetics 101: What we know and what we don't know

9:55 - 10:20 a.m.

How to Talk with Family Members About Inherited Heart Diseases

10:35 a.m.

Morning Break

10:35 - 10:50 a.m.

What Can and Should I Do? Exercise and Lifestyle Changes

10:55 - 11:20 a.m.

Too Fast or Too Slow? Do I Need a Device or Procedure for My Heart Rhythm?

11:25 - 11:40 a.m.

The Future of Research 

Can we prevent inherited heart diseases in at-risk family members?

Using medication to slow the onset of HCM and DCM

11:45 a.m. - 12:15 p.m.

Patient Panel

12:15 - 1:15 p.m.

Lunch

1:15 - 2:45 p.m.

*Breakout Sessions


*Breakout Session Topics

  • Pediatric Considerations
  • Genetic Testing: Understanding and Using Your Results
  • Heart Anatomy
  • HCM Specifics
  • DCM Specifics
  • Exercise and Lifestyle

Note: Breakout sessions are 30 minutes long. Each session repeats, which allows participants to attend three sessions.  


To register for this event, please call (617) 432-7871, or fill out the registration for here


In this video, Carolyn Ho, MD, medical director of the Cardiovascular Genetics Center at BWH, discusses the role of genetics in the development of heart diseases such as hypertrophic cardiomyopathy.